Monday, April 16, 2007

Common

I have a cold now. Just a cold. My throat hurts and is dry, so I am drinking lots of tea and plan to rest today.

I can't take an antihistamine these days - it seems like it dries me out and guess what? It exasperates my other, bigger Sjogren symptoms.

Any winning suggestions when you can't load up on cold meds?

(I have a feeling that rest and liquids are probably key.)

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95 comments:

my oh my said...

Hey,

I got linked to your blog from... well, another blog. I have severe, debilitating Sjogren's, along with 3 other autoimmune disorders, epilepsy, and some degenerative problems in bones and vessels (vasculitis at 28, whee) from an accident that sorta did me in...

So that said, you were asking about what you do when you can't take cold meds... I take, actually every day now, mucinex... my sjogren's tends to cause my phlegm to form hard little chunks anyway, but it really helps with my sinuses and eases off a lot of issues when I get a bug. I also always take flexeril but tend to take more of it when buggy-muscle spasms are much more prominent when you have an infection anywho...

I can't take sudafed, but I can take phenylephrine (the PE kind of sudafed) and it is ok, though not fantastic. Drixoral (while it has sudafed, sometimes it's what I *need*) is really my lifesaver in terms of colds with itchy sinuses and stuff--it is the only one that doesn't freak out my sjogren's, in particular. If you ever need a cough med, I'd call your doc and request benzonatate (200mg is a standard dose, 1 capsule every 6 hours or so)-it's non-narcotic (one of the few around) and super. And my other Sjogren's aid is found in Theratears Nutrition--from Advanced Vision Research (they make the eye drops my doc gave me after Lasik, which yes, I was able to get with the right doc, the right prep-restasis religiously-and the right followup)... it's got a very well-controlled pharmaceutical grade marine lipid oil along with flax seed and mixed tocopherols. Helps eyes, throat, and sinuses alike. I already eat loads of fish, which helps, but this keeps me in check on low fish consumption days in particular...

And before you think I'm too nuts as far as saying a million and one drugs, I was a third year med student before I became disabled, so.... I've had a nice dose of pharmacology, more specific to rheumatology and neurology than all other fields combined. My sister is a professor, so I'm actually an "assistant" for her online nutrition courses at one of the colleges she instructs at. My life revolves around medicine and food, two things I am very confident in my knowledge about... so yeah, total stranger butting in... not a blogger, actually, I'm an lj-er, been using it for years now.

Love your user name, btw :)

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kathie holt said...

Thanx for the great tips... I was diagnosed with sjogrens about years ago... forgot about it... and have been seeing a naturpath for about 6 years for what I thought was other stuff....... my eyes got bad and the eye dr reminded me I tested positive for sjogrens... looking back I've had so many symptoms....too many to mention and a bad flare up right now.....I think stress related...I have recently had pressure in my chest... like anxiety... that got better when I calmed down... would appreciate any other good sources of info... I live in Portland Or... and plan on hooking up with a good dr...knowledgeable in regards to sjogrens.. my email is katelizh@Comcast.net

kathie holt said...

Thanx for the great tips... I was diagnosed with sjogrens about years ago... forgot about it... and have been seeing a naturpath for about 6 years for what I thought was other stuff....... my eyes got bad and the eye dr reminded me I tested positive for sjogrens... looking back I've had so many symptoms....too many to mention and a bad flare up right now.....I think stress related...I have recently had pressure in my chest... like anxiety... that got better when I calmed down... would appreciate any other good sources of info... I live in Portland Or... and plan on hooking up with a good dr...knowledgeable in regards to sjogrens.. my email is katelizh@Comcast.net

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