I saw Dr. Rheumy today. As expected, we discussed the meds and came up with a plan for the rest of the summer. I will continue going up on the Imuran, and hopefully wean off off Prednisone this fall. Everything else is staying the same.
I could tell a big improvement in my legs - he ran the pinwheel up and down and I could both feel my leg and I didn't experience any pain. (I still don't have much sensation in my feet, but it has been that way for almost two years.)
I was pleased that I had lost weight; I was proud that I have resumed a workout schedule, joined a gym. He chided me to keep working on it. I ignored him (a little anyway) and just remembered that I am doing quite a bit. I'm still proud of myself. I am sweating and aching and doing what I can.
I am grateful that he listens, that he has taken my concerns seriously. Not every doctor does. I get tired with the kiddos during the summer, but I don't need a daily nap now. I have been more social again, spending time with friends. Hopefully this remission will last.
sjogren'ssyndrome rheumatology Imuran neuropathy checkup