update: stupid cluster headaches and blue fingers

First, let's focus on the positive, shall we? The EE is doing much better: I am continuing the steroid treatment and eating carefully, but I did have prime rib on Christmas without any trouble. It's been months since I could eat something like that.

I am so thankful. My life is much easier now.

But now for the bummer news: I'm in the middle of a cluster headache cycle. I had a migraine on Friday, followed by two 2-3 hour clusters, one of Sunday and one on Christmas morning. I usually get several a day, so it could be worse. I'm taking prednisone, upped my neurtontin and prescription migraine meds. I took my last verapamil I had on hand and I am waiting for my neurologist to call me back.

I got a little weepy yesterday, worried I was ruining Christmas, curled up on the couch. Greg was quick to point out that the kids were distracted and fine. I was a bit loopy all day.

Right before the headaches began my fingers are turning blue, from Raynaud's syndrome. I wonder if there's a connection.

That's all for now. I hope your holidays are joyful and pain-free.

Comments

lapoflux said…
I'm so sorry to hear you are still suffering from cluster headaches - and I am sure them falling at Christmas makes them feel all the worse.
Fingers crossed you feel better soon and try not to put too much pressure on yourself because it's Christmas... it's a special day, but just a day. You are far more important.
Sending many many positive vibes and prayers your way.
klbrowser said…
Don't know if Raynaud's and headaches are connected, but I've got 'em both too. They are both common in Sjogren's, of that much I am certain.

Does your Raynaud's make it difficult for you to type? I've started wearing gloves indoors while typing, and it seems to help.

Glad your esophagus is behaving better. It's nice to be able to participate in holiday meals.
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david mcmahon said…
Came here from Cami's blog. Hope the cluster headaches have gone. From the bottom of my heart, I wish you health in the new year ....
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